Wow...

Has it really been two weeks since I've updated on here? I suppose so. Oh well, sorry. What can I tell you about the last to weeks? Man... It's been quite a ride. To tell you the truth not that much has happened, but just the enormity of what is happening and how close we're getting is starting to catch up to us. Along with that, just the ordinary pressures and strains of life, love, and godliness start to become pretty taxing. Ah well... Let it begin!

So back to Today, August the 26th. I've recently spoken with our scheduler at Cleveland. Asked her directly, "Do you still have us down for an 8/31 admission?".
And she does. "Are there any shortages I need to be aware of that could be a problem?". Believe it or not, she wanted to know why I asked. Of course, I explained the previous failure in a respectful manor. She assures me there's nothing to worry about. And yet, 5 days out, I worry. Something tells me this just wont be as smooth as it needs to be.
We'll see.

So we're starting to get ready for our "vacation". have people lined up for various things. Trying to meet with people as I can before I go. I feel like I'm running out of time. So, as this week comes to a close, if I don't manage to get you, I'm sorry.
I can think of a lot of folks that I really wanted to get in touch with before I left, but just sort of ran out of time. I don't know why, but I didn't see this time shortage coming.

This week, Ella is a major focus for Amanda and I. Last night we took her to the mall and just sort of let her do her own shopping. Which means we went to a little girls jewelry store, a candy shop, and we did a little shopping for a new outfit. Not much. Of course Dinner, and a Cinnabon as well. 'Cause there just wasn't enough sugar in the candy. Today... Chuck E. Cheese. "Where a kid can be a kid". And, where an adult can sit and have a very average cup of coffee if you go early enough. But she had a blast and we got to see some friends. Tomorrow night, dinner with Mimi (my mother) and who knows what else.

While I'm on the topic of Ella, We sent her heart monitor back! We had it for two months, and could never find an episode of her SVT. We asked frequently and I don't think she had any that we just didn't catch. So, that's awesome. We're probably done with that. Doc, didn't want to see her or have her take anything. Just sent the stupid monitor back. Great. Thank ya Jesus, and thank you all for your prayers.

More good news, while I'm at it. I think last post I said I was improving with my seizures. I seem to have kept that going. I haven't had any in... well probably since my last post. I think that's pretty good. I'll take it, and it does make it easier to think clearly and make rational decisions in these coming weeks.

Well I should post more often. It looks lik I ramble on if I wait too long.
I'll save the rest for later.

Tony

OK then...

We seem to be having a bit of a turn around. That's a good thing, huh. Over the last four days, I've had two good nights. I know it doesn't sound like much, but It is definitely an improvement, and I'll take what I can get.

Last night was one of those good nights, which is a great way to start the weekend. Ella and I have had a great day already. We had a fun playing dress up, played outside a bit, went and had a picnic in the truck bed. Just a good day at the house. This evening, Amanda & I are headed to a friends house to do a little party / grill action. Nice. Ella will be hang'n out with Heather (my sister) and her family. It's a good dry run for the whole separation thing. I think she'll do just fine. She loves her cousins.

Also, I'm hoping this will ease Amanda's nerves as well. She doesn't leave Ella overnight hardly ever. Maybe 4 or 5 times. Ella's 4. And also Amanda could use a little time away w/ friends. Me too.

Hey for those of you following along at home, so all of you. We took Ella to a ped. cardiologist yesterday. Her heart races every once in a while an her regular ped. sent us on to this guy. Anyway, We think she has SVT (Supraventricular tachycardia). At this point it's nothing to serious. we have a beeper sized monitor we're supposed to use to record an event if she has one, and the report it back to the Doc. Out side of that nothing to be done yet, possibilities later, but for now, please add this to the list.

That's really about it for now. Sorry if this post rambles abit.
I hope you have a great weekend.

Tony