Whaz-up which-U

So I had several people ask over the last few days, and I'll tell you. "I'm doing alright." That's not your standard "Pavlovian" response greeting/answer.

Male 1: Hey man, How ya doin'?
Male 2: Fine. How 'bout you?
Male 1: Ah, you know, I'm doin' alright.

How 'bout some tunes?



Not at all, In fact "alright" is an improvement over the last few weeks to be blunt. The last few weeks have been rough and I've counted my weeks in good nights as opposed to bad ones. However, this week we seem to be making a turn around. I've put a small string of seizure -free nights together, and the the nights that aren't, seem to be lighter. It's a good thing. So while I can't tell you that I've been miraculously healed, I feel as thought I'm improving.

With that in mind, I begin to become cautiously optimistic for the future and for Cleveland. Now that I have some control over my evenings/weeks it seems easier to get through this waiting period. 2.5 weeks isn't as daunting as it was before. A good thing.

A good example:
We were at a friends party for her 1 year-old. While there, we made plans to hope in the car the next day and go to Holiday World. That's pretty cool. Perhaps your family is spontaneous and this seems small, but this never happens around our place.
Regardless, we did it. It was exhausting, but an absolute blast! Ella will probably ask to go every weekend. So much fun. If you're an FB person than maybe you've seen photos, if not, here you go.

So, where was I? Oh yes... doin' alright.
I want to let you all know that I am in fact doin' alright. I could be better, but so could everyone else. So once again, I solicit your prayers, and am thankful for all the support offered/given.

I'll write you soon.
Tony

OK then...

We seem to be having a bit of a turn around. That's a good thing, huh. Over the last four days, I've had two good nights. I know it doesn't sound like much, but It is definitely an improvement, and I'll take what I can get.

Last night was one of those good nights, which is a great way to start the weekend. Ella and I have had a great day already. We had a fun playing dress up, played outside a bit, went and had a picnic in the truck bed. Just a good day at the house. This evening, Amanda & I are headed to a friends house to do a little party / grill action. Nice. Ella will be hang'n out with Heather (my sister) and her family. It's a good dry run for the whole separation thing. I think she'll do just fine. She loves her cousins.

Also, I'm hoping this will ease Amanda's nerves as well. She doesn't leave Ella overnight hardly ever. Maybe 4 or 5 times. Ella's 4. And also Amanda could use a little time away w/ friends. Me too.

Hey for those of you following along at home, so all of you. We took Ella to a ped. cardiologist yesterday. Her heart races every once in a while an her regular ped. sent us on to this guy. Anyway, We think she has SVT (Supraventricular tachycardia). At this point it's nothing to serious. we have a beeper sized monitor we're supposed to use to record an event if she has one, and the report it back to the Doc. Out side of that nothing to be done yet, possibilities later, but for now, please add this to the list.

That's really about it for now. Sorry if this post rambles abit.
I hope you have a great weekend.

Tony