I'm unhooked,showered, and getting ready to go. I should be released from my deluxe accommodations here at the EMU in room 3 soon and then we'll be headed home.
The Electrodes came out yesterday. It was less than efficient, and no time lines were kept, but that's not really news. We started 2 hrs. late. I spent 5 Hours in recovery (instead of 60-90 min.) most of this is because the nurses have such a hard time getting a hold of Dr.'s to get orders. The important thing is that it all went well and I got back to the room with out complications.
That brings us to today. After speaking with the Gonzalez (Surg), he's got a more positive outlook for things to come. The details are a bit much to explain here, but I am much relieved. Anyway, I as I've said so often, on behalf of Amanda, Ella and myself, Thank you for your prayers.
Showing posts with label options. Show all posts
Showing posts with label options. Show all posts
Thursday, December 3, 2009
Wednesday, December 2, 2009
Last day with a tail
No, I'm not evolving, I'm having the electrodes removed at 1p today. I cant wait. I got these things put in on Tuesday the 24th @ 7:30a. We arrived at the hospital at 6a per our instructions. Since then, I haven't had anything more than a sponge bath. So... Amanda is ready for this to end too.
We have been telling doctors, surgeons, residents, nurses & assistants that we need to get out of here "No later than 10a Thurs. morning. They all have been saying it's no problem. I'll believe it when I'm out the door. But I do think they will make an effort.
But, I guess I should tell you about the consultation with Gonzalez(surgeon). He's giving us some options about how to proceed. As, I give you this, keep in mind he has not received the results from the latest sizzle test.
Anyway, Opt. 1) Do nothing, wait for better medicine, or better technology to develop so the risks will be reduced in the future.
Opt. 2) Proceed with the transection, go on as planned and take the risk of a "weak" arm/hand (anything from mild lose of feeling to completely useless non-functioning arm.)
Opt. 3) Still proceed, but in a different manor, preform a DTI ( a form of MRI that shows actual brain fibers.) Then, While the transection is in process, they will wake me up under a local anesthesia, and constantly test my motor function while he is removing tissue. Wow!
He is leaning toward Opt.3. He says there's about a 60% chance of completely removing the seizures, and having no affect on my hand. but with opt. 3, there is a much better chance of being able to rehab the "weakness".
It's a lot to digest when a surgeon looks you in the eye and tells you all of this and you've already come this far, with 10 holes in your head. We knew it was a possibility, but it's not what we expected for some reason.
Well I don't know that I can be anymore open/transparent than that.
They should take me to the OR in a little less than an hour so.
I'm Tony Rench
Stay classy Indianapolis
We have been telling doctors, surgeons, residents, nurses & assistants that we need to get out of here "No later than 10a Thurs. morning. They all have been saying it's no problem. I'll believe it when I'm out the door. But I do think they will make an effort.
But, I guess I should tell you about the consultation with Gonzalez(surgeon). He's giving us some options about how to proceed. As, I give you this, keep in mind he has not received the results from the latest sizzle test.
Anyway, Opt. 1) Do nothing, wait for better medicine, or better technology to develop so the risks will be reduced in the future.
Opt. 2) Proceed with the transection, go on as planned and take the risk of a "weak" arm/hand (anything from mild lose of feeling to completely useless non-functioning arm.)
Opt. 3) Still proceed, but in a different manor, preform a DTI ( a form of MRI that shows actual brain fibers.) Then, While the transection is in process, they will wake me up under a local anesthesia, and constantly test my motor function while he is removing tissue. Wow!
He is leaning toward Opt.3. He says there's about a 60% chance of completely removing the seizures, and having no affect on my hand. but with opt. 3, there is a much better chance of being able to rehab the "weakness".
It's a lot to digest when a surgeon looks you in the eye and tells you all of this and you've already come this far, with 10 holes in your head. We knew it was a possibility, but it's not what we expected for some reason.
Well I don't know that I can be anymore open/transparent than that.
They should take me to the OR in a little less than an hour so.
I'm Tony Rench
Stay classy Indianapolis
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