Alright!

It was a good day to get out an enjoy the weather. OK, the weather wasn't so great. But, This is the first day in a while that I've gotten some sleep. For about the last two weeks I've had between 2 & 4 seizures a night probably... 4 times a week. That quite a bit.

It's difficult on several levels. obviously it's difficult to deal with day to day. It put's stress on Amanda and the rest of our family. With a 7/6 OH trip coming I really don't want to start the 4-8 week process of switching meds. All of this to say that on Tuesday of this week, I went in to get a Dilantin level, to see if that could be pushed any higher. Thankfully, I was able to push up 100mg. I'm now on Dilantin 500mg, Topomax 400mg & Keppra 4000mg, and they're all about maxed out for their acceptable range. Which, means an impending switch. Hence, Cleveland.

So, last night, I still had one seizure, but it wasn't so bad. And I woke up @ 7:30 or so, able to get going and help Amanda and Ella through their morning routines. It felt good to be normal again. Hopefully, it's the beginning of easier nights for our family. More rest for all of us would be great.

So back to the beginning, "get out and enjoy the weather". Big plans of a library trip or pulling weeds, which is better post rain, or maybe a driving range, ended up a no go as I had a rather eventful nap. I did say "transparent"

So I guess for now, let's add sleep and rest to the prayer list.

Thanks guys,
Tony