How's everybody doing? It's been a while, so I thought I'd get back to it.
I was on the phone with a friend today and realized I haven't kept y'all up with current events. I have settled down a bit, so here's a more reasonable walk through of what's goin' on. (can you hear Marvin Gaye in the back ground?)
The new time line is pretty much the same as the first except it begins on August 31th. So essentially, I got pushed back about two months. A few other changes are apparent this time around. In round two, we are getting paperwork that tells us our admission date should be considered tentative. Hmmm... how interesting. More specificaly, they say "we will let you know 1-2 day ahead of you admission if there is a change". Well, we'll be a bit more proactive than that.
Also, the schedule includes time for surgery. Now this is a surprising change from before. I wonder if it to is subject to the rescheduling due to... whatever. Just to be clear, no surgery is planned, just scheduled. Not sure what that means. I guess I've got a block of time reserved.
Anyway, now you're up to date. I'll get back soon with more.
As always, please keep the prayers coming.
Thanks,
Tony
Wednesday, July 22, 2009
Thursday, July 9, 2009
As promissed, good news.
Yea, so some good news... Here we go.
I unfortunately had a seizure last night, which does not sound like good news. However, it's the first in about two and a half weeks. Pretty good. I feel like I'm able to function a good bit better, which is necessary to control a four-year-old.
Anyway, as far as that goes things are better.
Also, I have a pretty good foot in the door for a new job. Much needed. As of yet no offer, but I should get a call soon. I've looked and looked and there's just not much out there. So, A. I'm thankful to be afloat, & B. I'm also excited about what's to come.
We took a little trip up to S. Beloit. We saw a lot of family and got a chance hang-out with some of Amanda's family's recent graduates. So using that as a backdrop, I'm also grateful that we have quite a group of family and friends that are good to us, and very supportive.
And naturally, there's Amanda. Who's taken on perhaps more than she bargained for with the whole "for better or for worse..." thing. She's good to me. Sometimes not very nice, but sill, I think she kinda likes me. Love ya baby.
Anyway, that's it for now.
This is me signing off, saying "support comes in many forms, steel reinforced concrete, bras, and friends, just to name a few."
Please keep the prayers coming, we certainly appreciate them.
Tony
(Wow that was deep)
I unfortunately had a seizure last night, which does not sound like good news. However, it's the first in about two and a half weeks. Pretty good. I feel like I'm able to function a good bit better, which is necessary to control a four-year-old.
Anyway, as far as that goes things are better.
Also, I have a pretty good foot in the door for a new job. Much needed. As of yet no offer, but I should get a call soon. I've looked and looked and there's just not much out there. So, A. I'm thankful to be afloat, & B. I'm also excited about what's to come.
We took a little trip up to S. Beloit. We saw a lot of family and got a chance hang-out with some of Amanda's family's recent graduates. So using that as a backdrop, I'm also grateful that we have quite a group of family and friends that are good to us, and very supportive.
And naturally, there's Amanda. Who's taken on perhaps more than she bargained for with the whole "for better or for worse..." thing. She's good to me. Sometimes not very nice, but sill, I think she kinda likes me. Love ya baby.
Anyway, that's it for now.
This is me signing off, saying "support comes in many forms, steel reinforced concrete, bras, and friends, just to name a few."
Please keep the prayers coming, we certainly appreciate them.
Tony
(Wow that was deep)
Well then...
What to do, what to do?
Today, Amanda had a phone conversation with the office manager at my local neuro's office (JWM neuro- certainly not an endorsement.). Apparently, my Dr. is too busy to pick-up a phone. We had a couple questions for her. 2 questions to be precise, could spill into a third. Unfortunately, they don't like their Dr.s to discuss anything with patients in a "non-clinical setting". Knowing the nature of my calls, options for the Cleveland clinic, possibly elsewhere, instead they prefer to set up an appointment. OH, FOR CRYING OUT LOUD! Are you kidding me? You really expect me to believe that it's about a setting. How 'bout a little truth. We want to bill both you and your insurance for 2 questions. How ridiculous! What to do?
So, at this point of the whole fiasco. I can't really just switch Dr.'s because of all the crap I going through. But none the less, I find my self wanting to drive up there and give them a piece of my mind. (No pun intended.) What to do?
BTW, if anyone reading is looking for an Office Manager / Medical Assistant position, I can tell you that JWM needs both. BADLY! Not that they don't have them, they just SUCK. Just apply and tell them that I sent you because they need help. Right now I'm having a hard time explaining to my-self why private medicine is better than the socialist version. Seriously, what kind of crap is this anyway? I've often compared government run health care to going through the BMV to get medical care. Not pretty right? I'm not so sure look where we're at now. What to do?
Has this happened to anyone else out there? I mean it's frustrating to not get a call back, it's mind-numbingly-infuriating to get a call that says, "Your Doc won't call you." Really? I mean... really???
If anyone has a good neurologist they can recommend, that would be great. I'm not sure if I'll switch now or later. But I definitely will switch. Can't believe it.
Just can't believe it. What to do?
OK, side bar. I'm not trying to turn this into a political blog. I'm just pissed about the ridiculousness I seem to encounter. So since I've use two consecutive posts to vent, I'll put up some good news next.
Aaarrrggg!
T
Today, Amanda had a phone conversation with the office manager at my local neuro's office (JWM neuro- certainly not an endorsement.). Apparently, my Dr. is too busy to pick-up a phone. We had a couple questions for her. 2 questions to be precise, could spill into a third. Unfortunately, they don't like their Dr.s to discuss anything with patients in a "non-clinical setting". Knowing the nature of my calls, options for the Cleveland clinic, possibly elsewhere, instead they prefer to set up an appointment. OH, FOR CRYING OUT LOUD! Are you kidding me? You really expect me to believe that it's about a setting. How 'bout a little truth. We want to bill both you and your insurance for 2 questions. How ridiculous! What to do?
So, at this point of the whole fiasco. I can't really just switch Dr.'s because of all the crap I going through. But none the less, I find my self wanting to drive up there and give them a piece of my mind. (No pun intended.) What to do?
BTW, if anyone reading is looking for an Office Manager / Medical Assistant position, I can tell you that JWM needs both. BADLY! Not that they don't have them, they just SUCK. Just apply and tell them that I sent you because they need help. Right now I'm having a hard time explaining to my-self why private medicine is better than the socialist version. Seriously, what kind of crap is this anyway? I've often compared government run health care to going through the BMV to get medical care. Not pretty right? I'm not so sure look where we're at now. What to do?
Has this happened to anyone else out there? I mean it's frustrating to not get a call back, it's mind-numbingly-infuriating to get a call that says, "Your Doc won't call you." Really? I mean... really???
If anyone has a good neurologist they can recommend, that would be great. I'm not sure if I'll switch now or later. But I definitely will switch. Can't believe it.
Just can't believe it. What to do?
OK, side bar. I'm not trying to turn this into a political blog. I'm just pissed about the ridiculousness I seem to encounter. So since I've use two consecutive posts to vent, I'll put up some good news next.
Aaarrrggg!
T
Wednesday, July 1, 2009
Sometimes
I think violence is the answer. Let me step back about 18 to 20 hours. I get a call before dinner at Mom's place. As I see the caller ID says "Cleveland Clinic", I excitedly pick up the phone. Surly, they're about to tell me that everything is set to go. Insurance has cleared everything. Here is you're last bit of instructions before you arrive. something like that, right. ABSOLUTELY NOT! Apparently, some drug that they need to inject during the Ictal SPECT observation phase in "unavailable".
What is that suppose to mean!!? Are you telling me that if I were in congress, or Hollywood for crying out loud, I couldn't get my hands on some Ictal sauce? I think not. I can't stand the fact that we have been trying for 6+ months to get in to this place, and less than a week before go time, the retard behind the counter goes "sorry dude, we're outta fries."
I and my family, not just immediate, I mean FAMILY, scheduled and planned for this for who knows how long. Rage. Just rage. Now, I'm looking at a lot of the family that I had lined up to take care of Ella, back in school! "Cause guess what. School starts in mid August. How bout Ella, we don't want to pull her out of her school year. AAaaahhhhhhh! rage. Even looking for work. I'm in a the next pool to be hired and could really use a job. But guess what, they, like most employers, really value reliability. If I get hired soon, I could be twitchy. If the call in about a month, I have to sing and dance. "No, it's cool. I'll be back in a few weeks after I'm done getting my head checked out." What, what... rage.
Whew......
So, a shattered phone, busted lamp, a table and chair tossed here and there. I'm starting to calm down. Actually, typing this out helps a bit. I managed to stay calm while explaining the ridiculousness of all this to a "scheduler" this morning, so I get the opportunity to "speak" with a Dr. Probably 'cause they're not doing anything else. They're not admitting patients!
We're still trying to get some other arrangement worked out between Cleveland, my local neuro, and anyone else who I can get involved. Obviously, this is a venting post. Depending on what happens, you may get another.
T
What is that suppose to mean!!? Are you telling me that if I were in congress, or Hollywood for crying out loud, I couldn't get my hands on some Ictal sauce? I think not. I can't stand the fact that we have been trying for 6+ months to get in to this place, and less than a week before go time, the retard behind the counter goes "sorry dude, we're outta fries."
I and my family, not just immediate, I mean FAMILY, scheduled and planned for this for who knows how long. Rage. Just rage. Now, I'm looking at a lot of the family that I had lined up to take care of Ella, back in school! "Cause guess what. School starts in mid August. How bout Ella, we don't want to pull her out of her school year. AAaaahhhhhhh! rage. Even looking for work. I'm in a the next pool to be hired and could really use a job. But guess what, they, like most employers, really value reliability. If I get hired soon, I could be twitchy. If the call in about a month, I have to sing and dance. "No, it's cool. I'll be back in a few weeks after I'm done getting my head checked out." What, what... rage.
Whew......
So, a shattered phone, busted lamp, a table and chair tossed here and there. I'm starting to calm down. Actually, typing this out helps a bit. I managed to stay calm while explaining the ridiculousness of all this to a "scheduler" this morning, so I get the opportunity to "speak" with a Dr. Probably 'cause they're not doing anything else. They're not admitting patients!
We're still trying to get some other arrangement worked out between Cleveland, my local neuro, and anyone else who I can get involved. Obviously, this is a venting post. Depending on what happens, you may get another.
T
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